|
2019
|
EURAT
On the release of raw genomic data to patients and study participants
|
|
2014
|
American College of Medical Genetics and Genomics (ACMG)
ACMG Updates Recommendation on "Opt Out" for Genome Sequencing Return of Results
|
| 2013 |
Presidential Commission for the Study of Bioethical Issues
Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts
European Society of Human Genetics
Recommendations "Whole-genome sequencing in health care"
EURAT
Cornerstones for an ethically and legally informed practice of Whole Genome Sequencing
German Society of Human Genetics
Stellungnahme der Deutschen Gesellschaft für Humangenetik zu genetischen Zusatzbefunden in Diagnostik und Forschung
Berlin-Brandenburgische Akademie der Wissenschaften (BBAW)
Neue Sequenzierungstechniken: Konsequenzen für die genetische Krankenversorgung
German Ethics Council
Die Zukunft der genetischen Diagnostik - von der Forschung in die klinische Anwendung
American College of Medical Genetics and Genomics (ACMG)
ACMG Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing
|
| 2012 |
Presidential Commission for the Study of Bioethical Issues
Privacy and Progress in Whole Genome Sequencing
|
| 2011 |
PHG Foundation
Next steps in the sequence: The implications of whole genome sequencing for health in the UK
European Science Foundation, ALLEA
The European Code of Conduct for Research Integrity
|
| 2010 |
Leopoldina, Acatech and BBAW
Predictive Genetic Diagnostics as an Instrument of Disease Prevention
German Ethics Council
Human biobanks for research
Canadian College of Medical Geneticists
Position Statement on the Storage of Patient Genetic Information in Electronic Health Records
|
| 2009 |
Council for International Organizations of Medical Sciences (CIOMS)
International Ethical Guidelines for Epidemiological Studies
OECD
Guidelines on Human Biobanks and Genetic Research Databases
|
| 2008 |
World Medical Association (WMA)
Declaration of Helsinki
International Cancer Genome Consortium (ICGC)
International Cancer Genome Consortium Goals, Structure, Policies & Guidelines
Canadian College of Medical Geneticists and Canadian Association of Genetic Counsellors
Joint Statement on the Process of Informed Consent for Genetic Research
|
| 2007 |
OECD
Guidelines for Quality Assurance in Molecular Genetic Testing
National Ethics Council
Predictive health information in the conclusion of insurance contracts
|
| 2005 |
National Ethics Council
Predictive health information in pre-employment medical examinations
|
| 2004 |
European Commission
25 Recommendations on the ethical, legal and social implications of genetic testing
|
| 2003 |
World Health Organisation (WHO)
Review of ethical Issues in Medical Genetics
UNESCO
International Declaration on Human Genetic Data
German Medical Association
Richtlinien zur prädiktiven genetischen Diagnostik
|
| 2002 |
Council for International Organizations of Medical Sciences (CIOMS)
International Ethical Guidelines for Biomedical Research Involving Human Subjects
World Medical Association (WMA)
Declaration on Ethical Considerations Regarding Health Databases
Human Genome Association (HUGO)
Statement on Human Genomic Databases
Enquete Commission „Law and Ethics in Modern Medicine“
Schlussbericht
|
| 1999 |
German Research Foundation (DFG)
Stellungnahme zur prädikativen genetischen Diagnostik
|
| 1998 |
Human Genome Association (HUGO)
Statement on DNA Sampling: Control and Access
German Medical Association
Richtlinie zur Diagnostik der genetischen Disposition für Krebserkrankungen
|
| 1997 |
Council of Europe
Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine
UNESCO
Universal Declaration on the Human Genome and Human Rights
|
| 1995 |
Human Genome Association (HUGO)
Statement on the Principled Conduct of Genetics Research
|
| 1994 |
UNESCO
Report on Genetic Screening and Testing
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